Time to Sing

Today during speech Kaylee speech therapist was working with her and a lot of times she will sing to her.  Well today Jennifer was singing the itsy bitsy spider and she got Kaylee to sing it to.  You couldn’t understand ever word she was singing but you could make it out and Kaylee wasn’t just [...]

New Links

I have posted two new links (over on the left hand side) for you to check out.   These are links to websites for Adrienne O’Prey.  She is a young lady here in GA that we have found that has a similar condition that Kaylee has.  Please check out her website and blog.

K’s MRI

I have posted images from Kaylee MRI that she had done today.  You will be able to see that her brain is not normal.  You will be able to see what looks like black holds that is where white matter is missing and the fluid on her brain.  I did not post the worst looking [...]

Another Great Talking Day

Kaylee had another great day talking.  Today at speech she was saying “swing” and “car”.  These were actually spoken words.  They also work on the “K” and “T” sounds.  She’s doing good with both of these.  One step closer to talking like everybody else.  That is my goal for her…  To be talking, talking by her [...]

Great Talking Day

Kaylee had a great day.  This morning she got her self up for school (3 minutes before the alarm clock).  This makes the second day in a roll she’s gotten herself up.  She loves school this year.  This morning after I was done fixing her hair (with she doesn’t like) she said MAMA DONE then I sat [...]

Low count

Kaylee has been feeling tired over the last few days and not eating or sleeping much.  This morning I took her to the doctor.  As reported early on this site Kaylee has lost 2 pounds over the last two months.  Today they done a blood count and noticed that her white count was normal but [...]