“Rocky Top”

Today has been a day where Kaylee has had to listen to “Rocky Top” all day.  I had to wake her up this morning for therapy so of course she wasn’t happy.  Then on the way to therapy she was fussing so I had to play her song.  We listened to it all the way.  [...]

7-28-2009

Kaylee’s ready to get out of the tub.  She says DONE, DONE.  Get her out and stand her on the floor to wrap the towel around her she says DONE.  Pick her up and she tries to talk making the sound KKKK.  Feel her legs and she’s cold.  then it’s figured out she was trying [...]

Neurologist Visit

Today at the Kaylee’s doctor visit:  She weighed 28 lbs.  This is also a 2 lb lose.  The doctor is not to concerned at the moment, it could be that she has been through a lot in the last few months.  The weight lose could be because of her eye surgery, the heat of the [...]

Kaylee’s Recovery

K’s doing ok.  She has slept most of the day which is what she needs.  At times she’s in some pain but her eyes don’t look as bad as they did the last time she had this same surgery.  But the pain is more.  It’s about 9:30pm now and she is up eating and playing [...]

Up coming Week

This week is not going to be an easy week.  Kaylee has therapy Tuesday and Wednesday but most of all we are preparing for Kaylee’s surgery on Friday.  Please pray.  I know this is a routine surgery and she’s had it before but any time your put to sleep you don’t know what’s going to [...]

4th of July Weekend

Kaylee has had a great weekend.  Saturday we took her to swim and she is doing so good.  She is learning to kick her feet and blow bubbles in the water instead of drinking the water when her face goes in.  She is also learning to turn her had sideways when she brings her face [...]