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K’s doing ok. She has slept most of the day which is what she needs. At times she’s in some pain but her eyes don’t look as bad as they did the last time she had this same surgery. But the pain is more. It’s about 9:30pm now and she is up eating and playing and watching t.v. again but still resting some. Here are some before and after pictures from today’s surgery.
These are before pictures:
Here’s the after pictures:
This week is not going to be an easy week. Kaylee has therapy Tuesday and Wednesday but most of all we are preparing for Kaylee’s surgery on Friday. Please pray. I know this is a routine surgery and she’s had it before but any time your put to sleep you don’t know what’s going to happen. And she my baby. And I don’t think like everybody else, to me this is a big thing. Please pray for Kaylee’s eye surgery Friday July 10th.
Thank You All
For people that are looking at this site for the first time or haven’t known a lot about Kaylee and what she has over come. Please take the time to look back through the Archives on this site (look on the left side about half way down). It dates back to May of 2008 and also take a look at all the different pages including the medical history page. Please get to know Kaylee she is a joy. But most of all she is a MIRACLE.
Kaylee has had a great weekend. Saturday we took her to swim and she is doing so good. She is learning to kick her feet and blow bubbles in the water instead of drinking the water when her face goes in. She is also learning to turn her had sideways when she brings her face out of the water. She’s doing great at swimming. Also we had friends over to shoot fireworks and Kaylee just sat and watched like the big girl she is becoming. Also this past week has been good for her as well. She has been eating more and more and trying new foods, this is great. She’s got a long way to go but she has came a lot longer way to be where she is so far. Thanks for all the prays.
For people that are looking at this site for the first time or haven’t known a lot about Kaylee and what she has over come. Please take the time to look back through the Archive on this site (look at the left side about half way down). It dates back to May of 2008 and also take a look at all the different pages including the medical history page. Please get to know Kaylee she is a joy. But most of all she is a MIRACLE.
Thanks to ALL!!!
It’s been a while since the last update I’m sorry. This past week Kaylee has done good. She back to sleeping at night and during the week only taking naps on the days she has therapy it wears her out. This past week she has gotten me up out of bed by coming in and reaching for my hand and saying mama. She is also doing a lot more of what you say. She goes and gets Cortney when she’s told and goes to her room when she’s told and when she wants a bath she comes and gets you. She’ll get your arm and pull until you get up and then led you to the bathtub and try to climb in herself. Also this week she was watching Sponge bob (i know that’s not new) but while she was watching it Patrick said my good friend or something like that any way when he said the word friend Kaylee copied him and yelled out the word FRIEND. She is starting to talk more and more. (I hope by Nov. it will be easier for her and she’ll do it every time she needs to say something) Doctor update from Friday(6-26-09) Her very bad ear infection was all cleared up. Her doctor actually told her ok your good and I better not have to see you in here for a long, long while. We get a 2 week break from doctors until her surgery on July 10th. (I hope we don’t have to see the doctor before then). Her schedule for the rest of the summer is as follows: July 10th – surgery, July 14th – dentist, July 17th – post opp visit from surgery, July 27th – neurologist (possible), August 21st – MRI. Therapy are very Tuesday and Wednesday for 2 hours each day.
Kaylee had Physical, occupational and speech therapy today. She did good in all; especially speech. During speech she said the words baby, up, down, no and signed the word yes while trying to say it (she was able to make the y sound while she signed). She is doing good yesterday when Keith came home she meet him in front of the refrigerator and done her sign for me (meaning me/Kaylee) and then pointed to her painting on the refrigerator. She was showing him her painting and saying that she done it. To make sure I pointed to the painting and asked Kaylee who painted this and she signed ME! (Kaylee).
A Kaylee outside kind of day. Today was warm so the big kids went fishing and Kaylee and I got outside to paint. Kaylee loves to be outside. She loves the wind blowing in her face and the warmth or the sun on her skin. Enjoy she did.
But first the house work had to be done. Kaylee was playing while Keith was sweeping. When he got to Kaylee’s toy, he picked it up and put it in the chair. Well Kaylee wasn’t done playing with it so she climbed up in the chair with the toy to finish playing. Enjoy the picture of the event.
Oh and a speech update:
Last night Kaylee woke up in the middle of the night and I told her roll over and let me change you. She rolled over looked at me and said MAMA. I didn’t think much about it but this morning I went in to change her told her the same thing rolled her over and again she looked at me and said MAMA. This time Keith heard it and I double checked with him just to make sure I wasn’t hearing just what I wanted to hear. Kaylee has said this word before but only when she was mad and I don’t know if it was on purpose or not (I think no) but this two times it was on purpose and effortless and she was mad. Then when she got ready to eat this morning she babbled something then at the end of that was the word daddy while signing the word eat.
Eye doctor today. Kaylee is going to need surgery again on both eyes. He sat it up for July 10th then the next week she will go for a post op. appointment on July 17th.
This was taken at the hotel we stayed at. Kaylee had two doctor’s appointments Tuesday morning so we decided to just go to Chattanooga Monday and stay the night.
Kaylee enjoying the bed as soon as we got there. Update from the doctors: The birth defect center said she looked as she was doing great and they would see her back in a year. The Neurologists said the the EEG was abnormal and Kaylee does have epilepsy. The EEG report read as follows: Central spikes potentially epileptiform, intermittent focal slowing in the right hemisphere. So he sat her up for an MRI to be done on August 21st. Back to the eye doctor on Monday June 1st.
Kaylee’s end of the year parade. In the parade picture, this is Kaylee and her teacher Rachel. Kaylee’s class was dressed like bees. The year ended good for Kaylee. Look at the picture at the bottom and you can see how much she’s grown and see the difference in her strength by seeing at the beginning of the year you see she is still having to be held up some and at the end of the year she CAN DO it HERSELF. (no help) In the first picture is standing right at 35″ and in the second she’s right at 37″ 
End of the year gift by her teacher.
